Archive for the ‘Deeder Doings’ Category

Vlogging Reboot & Diederick

Wednesday, January 15th, 2014

(update thoughts at the bottom)

Tomorrow when I get a quiet moment, during daylight hours preferably, I’m going to do a video blog entry. Now that I have a new camera and invested in a little tripod this time, I may get to do that. The last time I tried talking into the camera was actually 2011, which is a little while ago now.

Tomorrow we’re going to the neurologist for Diederick. This will be his 3rd visit with our local pediatric neurologist. My seven year old son was diagnosed with epilepsy August 2013 and has had two EEG’s total so far. The first to confirm that he does have seizure activity, the second to monitor during a sleep deprived testing the effectiveness of his medication. Tomorrow will be his time to talk to his doctor about how he is feeling. Darren and I are fresh out of a meeting with Diederick’s 1st grade classroom teacher in which the special education teacher and the principal were a part of. It’s a preliminary meeting to potentially establishing an Individualized Education Plan (IEP) for him. His learning is lagging, but more concerning to me is the side by side work comparison from work from kindergarten to 1st grade performance. During my video I’ll hold up examples, I am not sure how clearly they will show. My sweet boy is even struggling in the order of letters in his name and can hardly draw.
He’s creative, imaginative, excited to learn, but when I look at the page, the effort to spell what he already should know…not that my heart breaks easily, but I do have a sinking feeling. I just want to pick him up and guide his hand, whisper into his head so that the words stick and give his finger the dexterity to put them on the page.
My son had to do summer school last year and this year goes to “learners club” with the Spanish speaking children who are working on their English. He thinks he’s going because the teacher wants him to learn Spanish!
When he leaves for school I say, “Be smart, Diederick, listen really well an don’t forget that it’s better to not finish than to make messy work.” No matter how our morning has been he has a, “Don’t worry, Mama, I’ll be smart!” If he is in good spirits he has a cute comment to add and if I’m lucky that big smile and a giggle. Really, I believe he tries with all of his might to do what he can and however that looks to the world, I am proud of my boy.

When he hangs his head I get down and give this boy who still loves his Teddy a hug. Come out, brilliant boy, I know you’re in there! Deed’s is awesome, I love him so much…that’s what my tired fingers feel like typing right now.
seattle13 043

UPDATE: Gosh, guys, I feel pretty criticized. Tam, my son’s situation is not based on my saying in the morning, “Be smart” He actually needs help. Darren, apparently in this post somewhere I said that I get a sinking feeling. By that I mean that I consider that there might be additional needs that we haven’t seen yet. I love that we have caring people in his life that can guide us through advocating for this young man in what they call early intervention. Mitch, should I go through and initial all my kids names? I don’t believe I’ve spelled out their names in entirety which is what would make my blog show up on a search.

Lets Try this Again

Tuesday, August 13th, 2013

animal adventure 062

Today’s picture taken from Olympic Game Farm, our adventure had for Diederick’s 7th birthday last month. Yes, yes…my boy is seven. Typing “Diederick” and “Seven years old” here is quite the thing, considering that this was really his baby book those years ago. So many pictures of his little face, posts full of cute quotes and fun activities.

Tomorrow is a big day for this guy; it’s his second EEG test to help doctors determine if our little man has a seizure disorder. The last time the test results were negative, bordering on inconclusive under the situation of him having moved around too much during the test. According to the nurse practitioner who we had a consultation with last week in Seattle, the EEG that we had done 4 years ago was actually an adult EEG.

Right now I’m busy trying to keep Deeds awake so that he can be properly sleep deprived for the 1:45pm test. Good luck to Darren on keeping Diederick awake over the 2 hour drive down to Seattle.
EEG =Electroencephalogram

We’re hoping for a yes on him having Absence Seizures. Not that we want him to have a label, but that we see a problem and hope to treat it with a proper diagnosis. Here’s a slideshow with a definition, you know, if you’re interested in learning about it but are tired of reading. It could happen.

Not his birthday, but what a flash back…

Saturday, January 26th, 2013

I really want to write, but I’m not on the computer that has my most recent pictures. So here I have one 6 1/2 years ago, against one 1 month ago. Of course I don’t need a second to find something to say about this first born of mine!

618314-R1-045-21148650_10152457178990425_1588433065_nOf my kids, it’s Diederick who I have the most vivid memories, here are a couple that make me go, “Oh wow, that baby turned into this big guy???”

He’s still gives hugs and kisses and plenty of “I love you Mommy”s

Diederick enjoys taking things apart with care and can put them back together following illistrated instruction.

He tells me that his favorite at school is art, and spends so much time with legos and his big white board. His ability to draw is improving all the time, sometimes I catch him copying down in picture what he has just built. If I had it on this computer I’d put up pictures that he has taken of his lego structures. :)

Diederick has always had things to say that made me smile and just need to share his wit with the world. Often, more often than not, it’s his perceptions of the ordinary. It’s either eye opening or embarrassing, sometimes both. That continues to be the case as he grows. Example from yesterday upon his arriving home from school. “Mom, I’ve got bad news. The crayon hog girl is a tell on now too.” Me: “Oh really? Well what’s her name?” D: “I don’t know; she just hogs the pens and stuff.” So she sits at his table for how long and he only knows her for hogging crayons. Nice.

The Realist

Thursday, October 18th, 2012

Not only does Diederick have a new interest in drawing, he loves it and is becoming more and more detail oriented in his work. My six year old wants to have everything true to life as best as he is able.

Tuesday I found him taking a picture of his face then carefully making an oval with erasable marker on his little white board. He asked me to take pictures of different body parts so that he could copy them into self portrait.

The smile was big, the arms long and the feet ginormous, the ears twice the size of the head. One hand in his picture had ten fingers, the other had six. I wish I’d gotten a photo of the finished product. But he erased the work in half the time that it took him to make. Next came a picture of clouds with a rainbow, although it was just black pen on purple backing, it was cheery as ever was one in the sky after a refreshing rain. Loving this boys art.

When she first came home

Wednesday, May 2nd, 2012

We were given two photo albums by Darren’s co-workers and one of those Your Baby by the Month books that’s like a calander with cool little stickies (thanks, GrammaMomma!).

As I take pictures of my new little girl I try to make mental sticky notes on “This one’s a save” or “That one is a sure print out! I’ll never forget that one!” But before I know it they’re off the camera, never finding their way to that printing station at the drug store, much less into a photo frame on the wall. Someone want to help me with that project? It’s not for lack of caring, just for my ever present weakness–low attention span. It’ll happen, the particular favorites will get collected onto a CD and I’ll get them printed out.
Before that, I’ll clean the house, do the laundry, pick it all up again, vacuum over there again, clean this, sweep that up.
Then, I’ll stand up to admire that calendar, only to realize that I never peeled one cute little sticky off to track my baby’s milestones.
Why? Because I was too busy cleaning up after the milestones.

OK. Enough on that. Here are some sweet snaps, it’s my kids.
Diederick, Carly, Koen and Abegayle. Abbie’s nearly one month old in these pictures. You know who else is there? Someone in their hearts who gives them that love you see in their eyes.
I think that’s God’s love. These kids would give anything for each other. It’s magnificent to see them together, and just to be a part of it all.

Even if I’m in my pajamas all day.

Every day I take pictures of the four sitting together, I guess because I’m still waking up to this! God’s given me four kids. And you know what? They’re OK with it. They have a wonderful way of pointing things out, and overlooking other details that I’ve always considered embarrassing.

All in all, hopefully I’m a better person for whatever tricks they’re playing on me. Thanks, God, for giving me these babies!